What is FND?
“Functional neurological disorder (FND) is a medical condition in which there is a problem with the functioning of the nervous system and how the brain and body sends and/or receives signals.” – Dr. Jon Stone
Who are you?
I’m an FND patient.
Like many FND patients, before receiving my diagnosis I was thought to have a rare, undiagnosed condition. Then I got diagnosed, and it turns out it wasn’t a rare condition at all. Life is funny like that.
You’re a patient? Why are you writing about medical + science-y stuff?
In the long road to diagnosis, I was often told that I might never get any answers about my symptoms, and that I would likely never recover. I didn’t like that.
So I studied. Microbiology, bioinformatics, anatomy, speech pathology, neuroscience.
This isn’t the same thing as expertise – I don’t have a doctorate in neurology, for example – but I do understand the basic questions.
What’s the point of this page?
This blog is my personal perspective on FND. It’s just one person’s take on how things are. I’m not a researcher, a doctor, or a patient advocacy organization like FND Hope. What they do is really important, and they do it much better than I can. I’m not trying to do their jobs.
Here, I do my best to explain what new FND research is suggesting, and what that means for FND patients and everyone else. We all have brains, after all!
This is also a space to tackle the social issues of FND. There’s much to say about how and why society marginalizes people with FND. I hope to weigh in on that, as well as foreground the views of other FND patients.
What you’ll see here, in short, is what I’m able to contribute to the conversation. I hope you find something that’s illuminating, meaningful, or at least makes you say “huh”.
Thanks for checking it out!
You can find me at @fndportal on Twitter.